Wispapalooza 2018 Show Guide

TUESDAY7:30 PM- 10:00 PM AMAZONBALLROOM 8 th ANNUAL Awards Ceremony Sponsored By This April, our family was hit with devastating news. We are the proud parents of four beautiful children, Jacob (7), Katelyn (5), Mason (3), and Logan (1). Our oldest, Jacob, in a year went from being a healthy six-year-old boy running, climbing and playing - to not being able to walk, talk, or eat by himself. After a year of desperately searching for answers and watching helplessly as Jacob rapidly lost skills, we received a terrifying answer: Niemann-Pick Type C, which is neurodegenerative, without a cure and fatal. It is a very rare genetic disorder and is sometimes referred to as ‘Childhood Alzheimers’. Although our other children seemed healthy, we had them tested as they had a 1 in 4 chance of also having the disease. After about four agonizing weeks of waiting, we were again devastated to find out our three-year-old and one-year-old also have the debilitating disease. That means three out of our four children have the awful disease that, without help, will cause them to progressively suffer more and more and then lose their lives. The day we found out was the hardest day of our lives. WISPA CHARITY AUCTION TO BENEFIT THE RUBEN FAMILY https://www.32auctions.com/wispapalooza2018 The WISPA family was deeply saddened to learn of the passing of Lily Rin Wint. Two-and-a-half-year-old Lily Rin was to be the beneficiary of this year’s charity auction, though sadly, she passed away on May 28, 2018, Memorial Day. Lily Rin was the beloved niece of Justin Russell, a Lead Field Tech at ISP Management; And from what we’ve learned, she was a remarkable little girl who touched everyone she met with her charming personality and sweet spirit. To Lily Rin’s parents, her uncle Justin, and the rest of your family and loved ones, we send you our sincerest condolences.